Greetings to everyone!
I am Janeil. I live in the beautiful city of Cleveland, Ohio with my husband, Peter and fuzzy-bellied cat, Sybil. I have had 26 birthdays. I enjoy television, match-making, taste-testing food trucks, and the finer things in life: fresh flowers, fresh babies, candy, Christmas, funnel cakes, freckled cheeks and sweet moments. I am an ENFP (Myers-Briggs lover) and a crybaby. I live with cystic fibrosis.
This blog will be mostly about the highs and lows of living with cystic fibrosis (CF) and CF related diabetes (CFRD).
The Lord has challenged me both physically and mentally, and I know that He wants me to use my illness for His will. While I may curse and be thankful for CF in the same breath, I believe in my heart that CF is my battle to endure while here on this earth. I try to live with a positive attitude and a grateful heart everyday. However, it is difficult to be an adult- to be married, to work, to better myself, and to plan for the future- all while managing a complex and time-consuming chronic disease with no guarantees. I fail more than I succeed, but I plan to enjoy every single day I wake up with breath.
This blog will be real and honest (with a bit of sun).
In high school, I won “Most Optimistic,” and optimism has always been my primary defense mechanism. I believe I have used optimism to shield people I care about (including myself) from the reality and pain of CF. Because of this, the majority of the people I surround myself with have little understanding of what having CF actually looks like. They see the sugar-coated, sunny explanation that I allow them to see, but not the dark, isolating side. I have come to realize this way of living isn’t fair to either party and hopefully, this blog can be a platform where I share my life and experiences openly and honestly.
Being an ENFP, crybaby, and highly sensitive person makes me emotional, too emotional sometimes, and there may be moments where I write about genuinely difficult things (I may also cry during dog food commercials but that’s for another time and place). I do not want pity, instead I desire support, love and prayers when needed most. My posts are my personal views and may not be shared by all, but I hope it will be helpful or relatable to some.
This blog is open to comments, questions, and experiences from those with CF or those without. I would love to hear from anyone remotely interested in life, cystic fibrosis, or the marriage of both.
Thank you for caring about me, my disease, my thoughts and supporting the need for CF awareness.
Salty Girl Out,